Mason’s Story

There doesn’t seem like enough words to express how thankful we are for everything you have done for our family.

21766656_297392380738444_5134201689792138809_nOur journey began at our 20 week ultrasound in January, 2017.  We learned our baby Mason had a rare congenital heart disease known as CCTGA, congenitally corrected transposition of the great arteries. The future for him looked so easy — as easy as heart disease comes. He was born perfectly healthy, with no signs of distress.

At about a month old, things began declining slowing. At 3 ½ months old Mason and our family traveled to Boston Children’s for his first open heart surgery. Thirty days later we returned back to Virginia to find he was in heart failure. After months of trying to control it, he showed no improvement. That was when we faced our only option — to list him for transplant. 

We felt so scared, but after asking our doctor to give him life and he led us here, we knew it had to be done.43539698_492767594534254_5497748148233175040_n

August 30, 2018 we went for Mason’s G-tube surgery. It was that admission we realized he was in complete heart block. About a week and a half after discharge we came back in due to issues with his G-tube. That’s when we realized that this was “the admission,” the one that kept us in until Mason got a new heart.

On October 21, 2018 Mason received the greatest gift of all, his perfect donor heart. During our admission my husband and I took shifts. I spent the week in the hospital with Mason, while my husband worked and cared for our two girls. The weekends he took hospital shifts while I spent needed time with our girls.

For those couple of months it felt so hectic and we all felt so spread apart.

It wasn’t until coming to The Alyssa House that our family felt whole again. The Alyssa House felt so warm and welcoming, and was the best recovery regimen our entire family needed.

46441699_510500499427630_4337150927183020032_n

We have spent more time bonding and enjoying as a whole family than it feels like we ever had before.

It’s been a true blessing to have a place to call home through our post transplant care. It was an honor to stay here, to learn about Alyssa, and partake in the house lighting. The generosity of everyone with The Alyssa House is beyond words. We feel honored and blessed to make this house our home for a short while.

mason-haislipIt is with sincere gratitude and appreciate that we thank you. It’s hard to leave the place that gave me comfort during an anxious time, but I hope it helps the next family as much as us.

 

 

Sincerely,

Tiffany, Dustin, Mason, Arianna, and Aubrey Haislip

 

 

A Message of Gratitude…

Cody_Family.png
I just want to thank The Alyssa House for allowing us to stay here in this wonderful home.

We started our journey back in 2014. Cody has been in heart failure with severe arthritis and vasculitis since he was 14… His whole teenage life was taken from him. Cody was blessed with another chance in life six days after being put on the heart transplant list.

We had a big set back and Cody was in the hospital longer than we expected. They had to reopen him back up 7 weeks ago.

Our 4 weeks here have been amazing. The healing has begun and he’s been doing great. We call this our home away from home and it’s been a blessing knowing he’s not too far away from the hospital…

We want to thank the Divers family, the church, and of course their sweet girl Lexie for bring Easter Bunnies. My grandbabies loved them

Our journey here is done. Now Cody gets to go home to graduate in June!

May the next family that comes here feel as welcome as we did! Thank you for sharing this home with our family!

 

Sincerely and always,

The Monto Family

A Thank You…

IMG_6620-edit.png“I can’t thank you all enough for what you’ve done for our family. Hearing the news that my daughter Layla would need a second heart transplant was terrifying.

“When we decided to come to the University of Virginia Children’s Hospital, it was very stressful trying to figure out where we would live and how we would get by being so far away from our family in Pennsylvania.

“You took away all that stress and worry by giving us a place to call home for four months. It has truly meant the world to us.

“Thank you for all your generosity and love. We were welcomed with open arms and I think that has made a huge impact on Layla’s recovery.

“Layla was born on March 30, 2007 with Hypoplastic Left Heart Syndrome. She had 1381522_543088572440447_413212140_nher first open heart surgery at 3 days old, her second at 6 months old, and then her first heart transplant a month after her 1st birthday.

“She battled countless complications in the years after her transplant. She had feeding issues, rejection, PTLD, absorption problems in her intestines, infections, and tumors. We thought she was finally in the clear in 2016. However, in April of 2017, she went into severe heart failure. The University of Virginia Children’s Hospital was willing to list her for a second risky heart transplant.

“In July, Layla was transferred and on September 21st, she received her second gift of life. She was discharged and we went to live at The Alyssa House.

“We will be forever grateful for the help and care we’ve been given. Thank you to the Divers Family, the volunteers, and the sponsors who have made The Alyssa House possible. You have made a big difference in our lives.”

IMG_6497IMG_6496edit-IMG_6616IMG_6509IMG_6601IMG_6620-editIMG_6559-editIMG_6573-editIMG_6584-editIMG_6616-bw-edit

Dancing for Joy

Thanks to our friends at Wilson School of Dance for bringing some joy to The Alyssa House. The local dance studio provided a free private dance class for our Alyssa House family!

Medical issues caused Layla to miss months and months of her own dance classes at home. Alyssa’s Mommy (who is also a dance teacher) was delighted to give her a private lesson before she heads home!

Thank you for caring about The Alyssa House.

 

As many know, our namesake Alyssa loved to dance.

 

IMG_6217_editIMG_6224_editIMG_6328_editIMG_6332_editIMG_6365_editIMG_6424_edit