Olivia — A Heart Transplant Superhero!

IMG_0910Olivia has been a true heart transplant superhero! We’re overjoyed she got to go home healthy and happy with her loving parents.

When you donate to The Alyssa House, you help families just like this!

“October 10, 2018: Olivia Rose is born. Our very first child. For a while, everything seemed to be normal. We had our baby home for a little over a month and then it happened…

“She was sick — or so I thought. I noticed her wheezing and called the nurse triage line for advice. After talking to the nurse and describing everything I saw, she instructed me to go to Children’s Hospital of The King’s Daughters Urgent Care immediately. I went and had Olivia evaluated and the doctor sent us home with a diagnosis of bronchiolitis, otherwise known as a baby cold.

“I took her home and watched closely over the next few days. Two days later, Nov 26, 2018, Olivia couldn’t hold any milk down and eventually she lost her appetite completely. I called her pediatrician and asked that he see her that day. He evaluated her and said, “I’m calling an ambulance to come pick her up because she isn’t breathing right at all.”

“We went to Children’s Hospital of The King’s Daughters, CKHD, and they admitted her. She was diagnosed with dilated cardiomyopathy. She stayed at CKHD for exactly one month before they decided she would need a heart transplant.

“Dec 26, 2018, Olivia is transported to UVA. The medical team was amazing! They all treated Olivia as their own baby and made my husband and I feel like family.

4M8A7635-edit“March 12, 2019: Olivia is given a second chance at life. She received her new heart and set the record for post-transplant recovery time! Two  weeks after surgery she left the hospital to come stay at the Alyssa House, which has been an amazing resource. This has felt like our home away from home and they helped us in our transition from hospital to home. We cannot even begin to express our gratitude.”

Thank you so much,

The Bailey Family

 

 

Special thanks to our friends at Mason’s Toy Box and Christian’s Purpose for providing a new crib and car seat for this family!

Jovie’s Story — Family Testimonial

4M8A9987-editHow exciting it was to find out that God was blessing us with our fourth precious child to love and raise!

At 19 weeks we found our that Mom had a rare pregnancy complication that would cause our sweet girl to be born early. Although we had high hopes of a scheduled delivery at 34 weeks, an emergency required delivery at 31 weeks.

Our sweet Jovie (meaning strong and happy) stayed in the NICU for 6 weeks, where she received the most outstanding care!

One of our greatest gifts during this journey was The Alyssa House, and the wonderful people that we met along the way! Our gratitude cannot be expressed adequately with words, but we will always remember this blessing and will pray for this ministry always!

With thanks and love,

The Hales

Will, Ashley, Victoria, Emery, Davis, and baby Jovie.

 

(Feb. 2019)

What Every Child Deserves — A Reflection on 2018


At the very heart of who we are and all we do for children is this essential truth, expressed so fervently by the one who continues to inspire us: Alyssa Grace Divers.

1020121222aFor Alyssa, nothing was more important than family.

That’s why we’re passionately committed to giving immunocompromised children in medical crisis who are far from home what every child deserves – a safe and warm place to stay during their medical treatment with their families at their side. Whatever it takes.


IMG_1684-edit-betterThanks to amazing supporters like you, The Alyssa House is achieving our ambitions. We’re forging key partnerships, making new friends who share our love for these families, and advocating for best place to call home-away-from-home. Together, we are achieving truly remarkable results.

In 2018, we provided over 350 nights of free housing at The Alyssa House for children receiving care at the UVA Children’s Hospital.

IMG_0124Housing that provided a place of refuge for those far from home and peace of mind during true crises. Thanks to people like you, our Alyssa House families are never charged a cent. Every dollar donated to The Alyssa House helps keep our doors open and our services completely free.

Our ‘Alyssa House’ kids  bravely battled cancer, recovered from major organ transplants, fought rare illnesses, and overcame the challenges of genetic disorders. Our guests ranged from newborns less than 72 hours old, all the way up to 18-year-olds, getting ready to take on the adult world..

After staying with The Alyssa House, our guests went on to graduate from high school, return to dance classes, win medals in the Transplant Games of America,… and most importantly, just enjoy being kids again.

IMG_1529_editWe are also very pleased to report that every single child who stayed at The Alyssa House in 2018 was fortunate to return home with a positive medical outcome.

As we enter 2019, we ask for your continued support of our shared cause… Our Alyssa House children and families deserve our very best. 

In true Alyssa fashion, nothing is more important than family.

Thank you,

Holly Duke, Board Chair

On Behalf of The Alyssa House Board of Directors & The Family of Alyssa Grace Divers

 

Holiday Surprise for a Former Alyssa House Family!

IMG_2985 (2)-editChristmas came early, thanks to our incredible friends at Mason’s Toy BoxMason’s Toy Box went above and beyond for this former Alyssa House family, and surprised Elaina on her 4th birthday. Elaina and her family stayed The Alyssa House this summer, while recovering from an emergency dialysis surgery.

Elaina received a new handicap accessible power wheels, which will help her play outside with her sibling and other kids her age! Elaina has caudal regression syndrome and uses a wheelchair.

A huge thank you to Mason’s Toy Box, for all they do for pediatric patients and their families. The Alyssa House is so grateful to be surrounded by such a loving organization and caring community.

 

A Message of Gratitude…

Cody_Family.png
I just want to thank The Alyssa House for allowing us to stay here in this wonderful home.

We started our journey back in 2014. Cody has been in heart failure with severe arthritis and vasculitis since he was 14… His whole teenage life was taken from him. Cody was blessed with another chance in life six days after being put on the heart transplant list.

We had a big set back and Cody was in the hospital longer than we expected. They had to reopen him back up 7 weeks ago.

Our 4 weeks here have been amazing. The healing has begun and he’s been doing great. We call this our home away from home and it’s been a blessing knowing he’s not too far away from the hospital…

We want to thank the Divers family, the church, and of course their sweet girl Lexie for bring Easter Bunnies. My grandbabies loved them

Our journey here is done. Now Cody gets to go home to graduate in June!

May the next family that comes here feel as welcome as we did! Thank you for sharing this home with our family!

 

Sincerely and always,

The Monto Family

Working Together to Help Families in Need

IMG_0198The Alyssa House is proud to have joined several other Charlottesville nonprofits to meet the ever growing demand for lodging for families of patients at the University of Virginia Children’s Hospital.

Learn more about our work in the Housing Collaborative in the local press coverage from The Daily Progress and NBC29.

http://www.dailyprogress.com/news/local/housing-collaborative-helps-families-at-uva-children-s-hospital/article_3635b59c-35e6-11e8-9e1e-d37bf11aa690.html

http://www.nbc29.com/story/37837003/local-nonprofits-partner-to-house-uva-childrens-hospital-families